Auria Clinical Informatics supports individual investigators, research groups and the industry in scientific research based on patient records. We strive for giving the researcher access to high quality data quickly, processed according to the researcher’s needs. Please read more about the available data.
High quality, diverse research performed according to good scientific practices is valued at university hospitals because research is the most reliable means to improve the efficacy of patient treatment. For this reason, scientific research is also part of the everyday work at the Turku University Hospital.
- Feasibility reports on data availability
- Data extraction and compilation
- Statistical analyses
- Access to a secure operating environment Atolli
- Efficient study planning
- Feasibility reports on data availability and patient numbers
- Advice on data extraction best suited for the research objectives
- Finding expert clinicians to collaborate on study planning and execution
- Analysis planning
- Coordination of a possible biobank arm of the study with Auria Biobank
- Correct data quickly
- Extraction of structured data and text mining
- Manual data extraction together with clinicians
- Access to a secure data analytics platform (DAP) for analyses performed by the researchers
- Understanding the data
- Statistical analyses
- Writing of the statistics section of reports and manuscripts
- Uncomplicated paperwork
- A single research agreement with Auria Clinical Informatics covers both data services and the clinician’s input
- Assist in filling and completing data permit applications
All research at the Hospital District of Southwest Finland requires a research permission granted by the district. We ask academic researchers to apply for the permissions for themselves. For our industry clients we offer permission application and management services. Turku Clinical Research Center provides information and instructions on how to apply research permits. For research conducted with data from the Hospital District of Satakunta and the Hospital District of Vaasa separate research permissions must be applied (links , only in Finnish).
The Health and Social Data Permit Authority Findata grants the data permit if:
- data is needed from several data controllers
- data originates from private social and healthcare service providers
- data is needed from the Kanta services. Findata grants data permits for Kanta data from the beginning of 2021.
In order to maintain patient data confidentiality, Auria Clinical Informatics delivers patient data to researchers primarily as de-identified. The Finnish patient ID (henkilotunnus) is only used when it is absolutely necessary for the study. In both situations, the researcher undertakes to keep the information secret and handle them only in accordance with the instructions he has received upon signing the research permit application.
Social and health records are considered as confidential information. According to section 13 of the Act on the Status and Rights of Patients (785/1992), patient records may be disclosed for scientific research and compilation of statistics in accordance with the Act on the Openness of Government Activities (621/1999).
The secondary use of social and healthcare registers is regulated more thoroughly with the Act on Secondary Use of Health and Social Data (552/2019). The aim of the act is to enable efficient and secure use of the personal data generated in social welfare and healthcare. In addition, the acts aims at securing personal data privacy and the rights in personal data processing.
If data from other sources than patient records is needed then authorities may also grant permission to access confidential data for scientific research, statistical or planning purposes if it is evident that granting access does not violate the interests for the protection of which the confidentiality obligation has been mandated (Act on the Publicity of Official Documents 621/1999).
The Data Set Catalogue (only in Finnish) of the Institute for Health and Welfare provides details of our data sets, for example listings of variables in each data set. If you cannot find the data set that you need on the list below you can ask us directly via tutkimuksentietopalvelut(at)varha.fi.
We aim at expanding our data set collection as feasible. Please take a look at the data sets of the Hospital District of Satakunta available through us.
- Aid equipment data (since 2005)
- Demographics (since 2004)
- Gender, date of birth, date of death
- Home municipality and hospital district
- Mother tongue and occupation
- Diagnoses (since 1992)
- Treatment tables (since 2006)
- E.g. height, weight, blood pressure
- Radiology (since 1996)
- Anamnesis and statements by radiologist
- Scans
- Visits and in-patient treatment periods (since 2004)
- o Location, specialty, mode of admittance, treatment start and end dates
- Patient origin and transfer location
- ICD10 diagnoses
- Laboratory tests
- Results (numerical) and patient specific reference ranges (since 2005)
- Statements (since 2014)
- Treatment costs (since 2012)
- E.g. costs of procedures, treatment periods and visits
- Medications (since 2010)
- Medications prescribed during in-patient treatment periods
- Cancer medications
- Prescriptions (for out-patient use)
- Neurophysiological tests
- Anamnesis and statements by neurophysiologist
- Pathology (since 1993)
- Anamnesis and statements by pathologists
- Snomed M and T classifications
- Pathology diagnoses
- Pathology tables
- Patient and occupational safety deviations (since 2007)
- Patient narratives (since 2004)
- Risk data (since 2006)
- Allergies, infectious diseases
- Hospital-acquired infections (since 2005)
- Spirometry (since 2006)
- Obstetrics
- Pregnancy (since 2008)
- Childbirth (since 1995)
- Neonatology (since 2008)
- Radiation treatment (since 1997)
- Fractions
- Total dose
- Procedures (since 1994)
AURIA CLINICAL INFORMATICS
Auria Clinical Informatics/ Tyks Building 11 B
PL
52, 20521 Turku
050 326 2869
tutkimuksentietopalvelut(at)varha.fi